Name: [VIRTUAL] People Centered Health Data Collaboratives: How they work and how they can be improved for global use (200901)
Start: 2023-09-20T08:45:00-0400
End: 2023-09-20T10:30:00-0400

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ISC and its partners will organise the 9th edition of the Science Summit around the 78th United Nations General Assembly (UNGA78) on 12-29 September 2023.
The role and contribution of science to attaining the United Nations Sustainable Development Goals (SDGs) will be the central theme of the Summit. The objective is to develop and launch science collaborations to demonstrate global science mechanisms and activities to support the attainment of the UN SDGs, Agenda 2030 and Local2030. The meeting will also prepare input for the United Nations Summit of the Future, which will take place during UNGA79 beginning on 12 September 2024.

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[VIRTUAL] People Centered Health Data Collaboratives: How they work and how they can be improved for global use (200901)

Keynote 1: What is a People Centered Approach and Why It Matters?
8:45 am - 9:00 am, Mei Lin Fung, Co-Chair, People Centered Internet
The world produces 328.77 terabytes of data daily. This information can be used to achieve the SDGs and shape a positive digital future IF the data is accessible as a global good and permissioned by those who produce it. This session will outline what it means to take a people centered approach to data collection and use, illustrate why this change now matters, and discuss current examples in health service delivery, financial service development, national digital transformation efforts, and more on how this can be implemented in practice so that policymakers and scientists can work collaboratively to harness the available information today to shape the future we all want tomorrow.
Panel 1: People Centered Health Data Collaboratives: How they work and how they can be improved for global use
9:00: am -10:30 am
How do we harness responsibly the vast amount of health information that has been created and stored by devices but too often is siloed and inaccessible to the scientific community? This session focuses on the use of health data collaboratives to make this information accessible to scientists and practitioners, the regulatory issues that need to be considered and/or changed, and discusses the promise and pitfalls of the use of personal data.
Speakers:

Bertrand de la Chapelle, Chief Vision Officer, Datasphere Initiative
Paul Murphy, Research Fellow, TELUS Corporation
Kate Wilson, Senior Fellow, People Centered Internet
Tamara Singh, Sherpa, Sustainable Finance Development Network
Henry Mwanyika, Regional Director, Center of Digital and Data Excellence
Claire Melamed, Chief Executive Officer, Global Partnership for Sustainable Development Data
Märt Aro, Digital Innovation Advisor to United Nations, European Commission, Estonia, and Lithuania

Moderator:

Mei Lin Fung, Co-Chair, People Centered Internet

Speakers

Märt Aro

DreamApply

About Märt - passion for educationMärt Aro’s involvement in the field of education development dates back to his secondary school years which saw Märt organising educational events for peers on a national level.Since 2004, Märt has established numerous organisations and companies... Read More →

Mei Lin Fung

CEO, People Centered Internet

Actively working with the World Summit on the Information Society to make participation by women to the 50/50 level for speakers and participants by 2022. Chair and co-founder with Vint Cerf of the People-centred Internet, gave the keynote on Decade of Digital Transformation at t... Read More →

Bertrand de La Chapelle

Chief Vision Officer, Datasphere Initiative

Building upon his diversified experience as a French career diplomat, civil society actor and tech entrepreneur, Bertrand has been a determined promoter and pioneering implementer of multi-stakeholder governance processes for more than 20 years. As Chief Vision Officer at the Datasphere... Read More →

Tamara Singh

Sherpa, Corporate Transition, Sustainable Finance Development Network

Tamara draws on her expertise in Financial Systems, Digital and Sustainability to consider global systems and the nudges that may help to render them more sustainable. She enjoys a portfolio career that allows her to devote her energy to her profession and her passions.Tamara earned... Read More →

Magdalena Skipper

Editor-in-Chief, Nature, Springer/Nature

Dr Magdalena Skipper is Editor in Chief of Nature and Chief Editorial Advisor for the Nature portfolio.A geneticist by training, she holds a PhD from the University of Cambridge, UK. She has considerable editorial and publishing experience, having worked as Chief Editor of Nature... Read More →

Kurt Zatloukof

Principal Investigator; EU BioBank

Evgueni Louikipudis

Digital Technology Supercluster, Canada

Tamara Singh

Sherpa, Sustainable Finance Development Network

Gora Datta

FHL7 University of California, Berkeley

Claire Melamed

Chief Executive Officer, Global Partnership for Sustainable Development Data

Henry Mwanyika

Regional Director, Center of Digital and Data Excellence, PATH

Dr. Henry Mwanyika is a certified enterprise architect and digital transformation advisor who serves as PATH’s Digital Health Regional Director for Africa. Dr Mwanyika is a trusted advisor to governments across Africa with more than 20 years of digital transformation experience... Read More →

Kate Wilson

People Centered Internet, People Centered Internet

Kate Wilson is a senior Fellow at PCI. Kate believes that the need for meaningful technology collaborations between the public and private sector has never been more urgent. Countries need partners who understand their challenges, and can provide the support and digital solutions... Read More →